Rare disease day

Learn, share, support
More info and main events on: http://www.rarediseaseday.org/

WOW!!!

This is my first-graders (class 2010-2011).

Picture taken a few weeks prior to my return home and a few weeks after my very first HM attack.
Love the heck out of these kids :o)

Miss them so much ;o(

How to cheer you up

You recognize him???

There's nothing like a good Wolverine to cheer you up!!!
There was nothing on TV tonight (French TV programs suck like that, yes...and it sucks even more when you're stuck in a hospital room), so I've decided to make it a Wolvie night.

Noticed the glittery sparkles on the DVD case and weird lettering?
Just a little souvenir from Japan! I'm a huge Wolverine fan, and Hugh Jackman IS the perfect match for the role. I just couldn't help myself from buying the movie, although I'd seen it 5 times at the theater in France and went to the red carpet event in Tokyo (saw the real flesh and blood Hugh Jackman!!!)

Huh...(sighs wistfully)

Aye, aye Logan Lovers ;o)

Ball it up

Today we've started on the ball therapy.
We use this gigantic ball to stimulate muscle response.
Laying on your back, ball under your butt and legs on top of the ball....Push hips up, then bear down...

Held twenty minutes then had to go back to my room :o)
Saved by the migraine!!
 ^_^

Look who's keeping me company!!

My friend Andy picked it for me at a game center in Japan. Cheers me up during physical therapy :o)

HM in France

I've read a little here and there and it's sad to see that France has very little information available about HM. Most people have never heard of it (not even regular physicians).
Some neurologists though, have read about it mostly in American medical articles and rely a lot on existing research groups in the US.

Yet two main centers have recently opened in Paris in La Pitié-Salpétrière and Lariboisière, whose neurological research centers have started working on genetic reasons for FHM (Familial Hemiplegic Migraine).
You can find information here (French readers only):
http://www.orpha.net/consor/cgi-bin/Disease_Emergency.php?lng=FR&stapage=FICHE_URGENCE_M3