HM in France

I've read a little here and there and it's sad to see that France has very little information available about HM. Most people have never heard of it (not even regular physicians).
Some neurologists though, have read about it mostly in American medical articles and rely a lot on existing research groups in the US.

Yet two main centers have recently opened in Paris in La Pitié-Salpétrière and Lariboisière, whose neurological research centers have started working on genetic reasons for FHM (Familial Hemiplegic Migraine).
You can find information here (French readers only):
http://www.orpha.net/consor/cgi-bin/Disease_Emergency.php?lng=FR&stapage=FICHE_URGENCE_M3